Arch Pathol Lab Med. 2009 Sep;133(9):1463-7. doi: 10.1043/1543-2165-133.9.1463.
Henrietta Lacks, HeLa cells, and cell culture contamination.
Lucey BP, Nelson-Rees WA, Hutchins GM.
Posts Tagged ‘privacy’
HeLa Cells Contaminating Other Cell Lines
August 21, 2013Article: The biggest threat to the genomic revolution? Spying scandals
August 14, 2013The biggest threat to the genomic revolution? Spying scandals — pro #sharing with few #privacy worries editorial http://fw.to/aLba6TX
The human genome contracts again
August 13, 2013Links related to the “HeLa Deal”
August 10, 2013The Immortal Life of Henrietta Lacks, the Sequel – NYTimes.com
http://www.nytimes.com/2013/03/24/opinion/sunday/the-immortal-life-of-henrietta-lacks-the-sequel.html
NIH makes privacy agreement with Henrietta Lacks’ family
http://www.usatoday.com/story/tech/sciencefair/2013/08/07/henrietta-lacks-nih/2627923
Blood ties : Nature News & Comment
http://www.nature.com/news/blood-ties-1.13513
A Family Consents to a Medical Gift, 62 Years Later – NYTimes.com
http://www.nytimes.com/2013/08/08/science/after-decades-of-research-henrietta-lacks-family-is-asked-for-consent.html
Deal done over HeLa cell line
http://www.nature.com/news/deal-done-over-hela-cell-line-1.13511
NIH director explains HeLa agreement : Nature News & Comment
August 10, 2013Coming Soon: Take Your Own Personal Data to Market | MIT Technology Review
August 10, 2013New site for selling your personal data for discounts — perhaps this could be applied to #personalgenomics
http://www.technologyreview.com/news/517356/if-facebook-can-profit-from-your-data-why-cant-you #Privacy
Reputation.com says it’s ready to unveil a place where people can offer personal information to marketers in return for discounts and other perks.
http://www.technologyreview.com/news/517356/if-facebook-can-profit-from-your-data-why-cant-you By Tom Simonite on July 30, 2013
Reuters Next — For Henrietta Lacks’ famous cells, new and unique protection
August 9, 2013http://preview.reuters.com/2013/8/7/for-henrietta-lacks-famous-cells-new-and-unique-1
http://www.reuters.com/article/2013/08/07/us-science-hela-idUSBRE9760YD20130807
QT:"
The decision applies only to researchers funded by NIH, which said it
"encourages" other scientists to abide by the agreement. Because
DNA-sequencing technology is cheap and ubiquitous in genetics labs,
the HeLa genome has been partly sequenced many times, and can easily
be fully sequenced again.
"Sequencing" refers to determining the precise order of the chemical
letters on a person’s genome, which is the full library of his or her
genetic information. Bits and pieces of that sequence spell out, for
instance, whether someone is at risk of diabetes or Alzheimer’s or
other genetic traits, as well as personal traits like the consistency
of ear wax.
These loopholes in the access agreement significantly weaken the NIH
move, said Mark Gerstein, a computational biologist at Yale University
who has raised concerns about threats to genetic privacy. "I doubt NIH
will get blanket agreement from scientists in every country" to follow
its protocol, "so it’s not clear what the agreement will be able to
accomplish."
"
Reuters Next — For Henrietta Lacks’ famous cells, new and unique protection
August 9, 2013http://preview.reuters.com/2013/8/7/for-henrietta-lacks-famous-cells-new-and-unique-1
QT:”
The decision applies only to researchers funded by NIH, which said it “encourages” other scientists to abide by the agreement. Because DNA-sequencing technology is cheap and ubiquitous in genetics labs, the HeLa genome has been partly sequenced many times, and can easily be fully sequenced again.
“Sequencing” refers to determining the precise order of the chemical letters on a person’s genome, which is the full library of his or her genetic information. Bits and pieces of that sequence spell out, for instance, whether someone is at risk of diabetes or Alzheimer’s or other genetic traits, as well as personal traits like the consistency of ear wax.
These loopholes in the access agreement significantly weaken the NIH move, said Mark Gerstein, a computational biologist at Yale University who has raised concerns about threats to genetic privacy. “I doubt NIH will get blanket agreement from scientists in every country” to follow its protocol, “so it’s not clear what the agreement will be able to accomplish.”
“
PwdHash
July 20, 2013U.S. Postal Service Logging All Mail for Law Enforcement – NYTimes.com
July 13, 2013on mail covers program :
Not just electronic comm. surveilled: Tracking postal metadata similarly to NSA email snooping http://bit.ly/15oZmNs via
@michaellawcarl
http://www.nytimes.com/2013/07/04/us/monitoring-of-snail-mail.html
QT:”
Mr. Pickering was targeted by a longtime surveillance system called mail covers, a forerunner of a vastly more expansive effort, the Mail Isolation Control and Tracking program, in which Postal Service computers photograph the exterior of every piece of paper mail that is processed in the United States — about 160 billion pieces last year. It is not known how long the government saves the images.
Together, the two programs show that postal mail is subject to the same kind of scrutiny that the National Security Agency has given to telephone calls and e-mail.
The mail covers program, used to monitor Mr. Pickering, is more than a century old but is still considered a powerful tool. At the request of law enforcement officials, postal workers record information from the outside of letters and parcels before they are delivered. (Opening the mail would require a warrant.) The information is sent to the law enforcement agency that asked for it. Tens of thousands of pieces of mail each year undergo this scrutiny.
“
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